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Specific Carbohydrate Diet™ & Holistic Medicine

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Help! I need your support Oct. 6th, 2006 @ 12:07 am
danana_banana
Hi all,
I am not new to Crohn's, we are old friends. I was diagnosed at the age of 3, and have battled with it for 14 years, ranging from moderete to severe. I have been on all the meds, tried all the treatments, was a medication guinea pig for awhile (quite interesting) but alas nothing proved to kick it into remission. I have been there, with those horrible stomach aches, the "blah" icky feeling, the nausea, the diet restrictions, the terribly embarasssing if I don't find a bathroom in a minute i'll have an accident diherria, the puffy steroid cheeks, the blood tests, the random consequences of weakened immune systems, and most of all, trying to explain all the drama and suffering to those who don't understand. it's almost impossible for them to wrap their heads around our everyday life. Recently I had to go the surgery route, after trying to avoid it for 14 years. I have a temporary ileostomy and hope to be reconnected soon. I have had a few complications so we'll see. keep optomistic, heads up, hopes high :]

The reason I come to you is to ask for your support. On Nov. 12, 2006 I am walking in the Las Vegas annual Guts and Glory walk hosted by CCFA. I need all the support I can get. If anyone lives in the area please contact me and I would be more than happy to have you as part of my team, or give you info on how to sign up individually. I would greatly appreciate any support or donations I can get for this walk, to my team (Dana's Crohnies for a Cure). The most important thing about IBD is to not only find treatments that work, but a cure. This is the way we can help. We need to raise awareness, and do all we can.

To donate, please go to:
https://www.kintera.org/faf/search/searchTeamPart.asp?ievent=176831&lis=1&kntae176831=81E2C01BC9CA45C4AF0D48F58DCB12B7&supId=0&team=1655579

or go to ccfa.org
click donate to walker
enter Dana Marshall-Bernstein

or you can contact me.

Thank you all so much, I appreciate any support I can get.
Keep happy and keep healthy!
Dana

P.S. If anyone ever has any crohn's related questions feel free to direct them my way, i usually have some experience based answers :)

P.P.S. I am starting as new nutritional drink next week called re-liv that i have heard only good things about. heard a crohn's story that it put one kids disease into total remission. will post more on it as i learn more. keeping fingers crossed :)
Current Mood: hopefulhopeful

Grain Free Gourmet? Sep. 28th, 2006 @ 07:38 am
shiromaguro
I've been checking out this cookbook on amazon since I have multiple grain sensitivites, but there are a lot of recipes that contain dairy as well, which I also cannot have. does anyone out there have this book? are the non-dairy recipes worth purchasing this book?

thanks :)

Aug. 28th, 2006 @ 08:04 pm
shiromaguro
I'm worried about health insurance. I'm filling out the paperwork to get added to my new husband's coverage, but it's asking me about pre-existing conditions. I'm thinking I should just check no, nothing's wrong with me, then get a new doctor and have him rediagnose my UC. I'm afraid this will come back and bite me in the ass though. =/ anyone have any experience with this sort of thing? what can I do????

take with you foods Aug. 28th, 2006 @ 02:52 pm
shiromaguro
I'm on a diet right now that only allows me to eat certain organic *cooked* fruits and veggies (no citrus, nightshade, or stone fruits... no raw produce except for bananas) and organic meats. no sugar, raw fruit/veggies, or grains AT ALL while I'm trying to figure out what's causing my debilitating digestive problems. this leaves me with a problem... what do I eat when I want to snack? I'm one of those folks that has to eat constantly to keep from passing out.

I've been carting around fresh bananas and little applesauce packs, but I need more than that! can anyone think of things that I can carry with me throughout the day that will help keep me alert and still fit within this elimination diet?

What goes in must come out Aug. 28th, 2006 @ 11:08 am
esjay
I find that I'm the worst in the summer because the heat makes me lazy and not really willing to prepare my food. Though, I've been been pretty good about planning ahead. I would just cook one big thing and eat it the next few days and its always a good idea to have yogurt prepared and fruits ready to snack on. There are some days when there's nothing to eat so I would have bananas and applesauce all day and sometimes I crack open a can of tuna. Its awful, I know...

Exercise has been a big help, I find that even though I'm not eating right (meaning an unbalanced diet), I don't get symptoms right away if I'm stronger.

Luckily, its been months and I haven't had any major symptoms! No pain, blood, mucus, no diarrhea! My only problem is that I haven't had a normal BM in more than a year. Its not diarrhea but its not normal either... here's a TMI moment: For lack of better wording, it sorta looks like cooked ground beef... augh! sorry sorry!Because of this, I started losing faith in SCD. But I've always kept in mind the words of my doctor, "This may possibly be the worst case of UC I've seen in my life". He didn't say that to me directly. I heard it through the grape vine. So I've been trying to endure patience. Patience. Patience.

Anyway, I think I might have hit a milestone. I don't know if its becuase of something I ate or if its because I've been doing the SCD for a while, but finally! I had a normal BM! I feel a little foolish for having that as a major goal in my life, but progress is progress.

So I was wondering what would you consider remission? I can't exactly say that I'm on it because up until now my BMs were not normal.

cream for tea Aug. 21st, 2006 @ 10:50 pm
gius
I love to make tea and...
I miss making it creamy.
Before I would use milk or cream,
but I can't use milk now--
any suggestions on what I could use as a replacement?

I've tried yogurt, but it makes it sour
and it separates into little dots
than blending into the tea.

Don't mean to spam, thought this may be of interest. Jun. 4th, 2006 @ 02:09 pm
amezce
Hey all!

I thought this may be of interest to some people? I’ve been inspired and have decided to create my own community. Basically an allergy friendly, intolerance friendly,specialist diet friendly community specialising in recipes that are:

Dairy free, Egg free, Gluten-free, Nut Free, Rice Free, Sugar Free, Soy Free, Nightshade veggie free, Seafood free, vegan, vegetarian, and recipes low in: Salicylates, Amines & Glutamate. (I will be adding to this list)

Click here to see its profile: http://community.livejournal.com/special_recipes/profile

Thanks!

Amezce

intro May. 2nd, 2006 @ 09:17 am
marliah
I am new to the group and wanted to introduce myself. I have 2 sons with autism (vaccine damamged) and one without (he is unvaccintated). We are starting the SCD diet because of the great things we have heard about it from other parents and our DAN! We are doing this as a whole family thing and started yesterday noon with the intro diet. We are planning to go 2 days (so noon Wed.) then try adding a couple new things (I am gong to try apples and almond flour to make muffins for the boys). For the last 20 hours we have eaten only turkey breast baked in the oven, the homemade chicken soup (carrots, chicken, water), eggs (lots), whie grape gelatin, and pork rinds (they are the exception I made to the starter diet because my oldest is SUPER picky and would not eat anything without a "bribe" with these he has eated a couple bites of egg and a few bites of cooked turkey.

We will be starting the yoghurt soon, just waiting on the arrival of our yoghurt maker. We are going to use goats milk for that. I am hoping this weekend we can start that.

My BTVC book is still en route to my house so I am hoping that arrives today or tommorrow.

I just wanted to introduce myself and was wondering if there are any others here doing the diet to help with autism.

Apr. 30th, 2006 @ 12:25 pm
esjay
Recently, I saw a commercial for Ulcerative Colitis on tv and they were endorsing this new website: http://www.livingwithuc.com/index.jsp

I took a look at it, and it just seemed to have general information just like the other medical websites. It eventually leads to another site with survey results and I was surprised at what I found. It looks like UC really seems to put a dent in a person's social life for some. It says some haven't worked full time jobs because of the illness, and decline from a lot of social occasions. I don't want to let UC ruin my life, but I find myself doing a lot of the things listed on the surveys. I "flake out" on my friends a lot. I've declined invites to weddings. I don't work 40 hour weeks because I just feel too weak to take on that much work. I mean, at least I'm not the only one who is doing this. I know this is just temporary until my symptoms clear up, but that survey just made me feel like an awful person.

Also, I want to switch doctors... because the one I have is not very supportive about my diet. I mentioned that I was going on it, and he belittled me. He said that by me going on the diet is me refusing his treatment. He wants me to be on the "low residue" diet, which means no fruits or vegetables. I was only allowed to have grains, rice, pasta, and meats. Yuck! I've tried that before and after two months on that horrible diet, I gained weight and I got into a serious flare up that sent me to the hospital. So I keep my SCD diet a secret. Its the only thing that's been making me feel better.

Everytime I get a flare up, it just seems he keeps adding more and more medication. After my first flare, he switched my medication from Asacol to Colozal. The next flare up that I've had, he put me on Prednisone and increased the dosage on my Colozal. I'm off the prednisone and my colozal dosage was lowered when my symptoms cleared up. But now, he says that after the colozal, he wants to try Remicade. I read that its infusions of protein that attaches itself to the protein molecules that we normally produce in the body to reduce inflammation. (Er... its been a while since I took biology haha). Well, anyway, its a new [expensive] treatment and the side effects are worse than the treatment; includes jaundice, pneumonia, death... I am completely against this treatment he's trying to put me on. I recently had a minor flare up. I didn't tell my doctor because it wasn't that serious and also because I am afraid that he'll recommend the Remicade again. I don't want to go against what he says because he is my doctor, but I hate dealing with him! I feel like a guinea pig. After that minor flare I spent a week on the starter diet, now I'm fine.

my new diet Apr. 30th, 2006 @ 10:58 am
funkaspunka
hi everyone!
i'm new to the community, and thought i'd let you know what i'm embarking upon...sorry about the long post...
i have crohn's colitis, and after trying a lot of mainstream medications which either worked or didn't, mostly with horrid side effects, i have decided to try a few more alternative things. mainly because the next drug i was going to be taking was Imuran, and the possible side effects freaked me out a lot.
so anyway, i've been trying a few things while i've been staying at my mother's, because i have the freedom of not working, so i can test things a little easier. last week i saw a more alternative Doc who did muscle testing to find out what was making me weak, and what would make me strong.
SO...i've got a huge change in my diet happening now. i've cut out dairy, sugar and wheat. i thought it would be hugely difficult, but for the most part i'm doing pretty well. and i've noticed a difference already...no bloating, no pain, and it's only been a few days!
he's also put me on magnesium supplements, flax seed oil capsules, probex (probiotics) and a multivitamin. the magnesium should help keep things moving in my colon, and also give me more energy.
but it takes a few weeks before the benefits really start to show, cos my bod has to get used to the new diet i guess.
so that's me!!!! lets hope i can keep it up :)
hannah
Current Location: nz
Current Mood: cheerfulcheerful
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